RESOURCES
Staying in
the know
We are committed to developing safe and effective therapies to help transform realities for those living with rare disease. But that also means helping you stay current and up to date on what is going on today. Learn more about resources that are available to provide support to you and your family.
Access
to genetic
testing
Mirum sponsors a genetic cholestasis panel testing at no cost to patients
to help accurately identify a variety of conditions. This panel may
assist in diagnosing a cholestatic liver disease.
ALGS Vitamins and Supplements Fund
Patients with Alagille syndrome (ALGS) often experience a reduced flow of bile to the small intestine which can cause problems digesting fats and absorbing fat-soluble vitamins such as vitamins A, D, E, and K. These deficiencies may cause malnutrition and contribute to complications related to growth. As such, vitamins often become an essential component to care for children with ALGS.
The HealthWell Foundation, a US-based organization, has launched a new fund to provide financial assistance to patients living in the U.S. with ALGS. Through the fund, eligible patients within the U.S. and U.S. territories who have annual household incomes up to 500 percent of the federal poverty level can qualify for up to $1,500 in financial assistance to obtain vitamins and supplements for the management of their condition.
Support for living with a rare disease
Find support for people and families living with rare disease:
Information about Alagille syndrome (ALGS)
Information about progressive familial
intrahepatic cholestasis (PFIC)
Information about biliary atresia (BA)
Information about Peroxisome Biogenesis Disorder – Zellweger Spectrum Disorder (PBD-ZSD)
Information about Cerebrotendinous Xanthomatosis (CTX)
Information about Smith-Lemli-Opitz Syndrome (SLOS)
Expanded
access
for
LIVMARLI® (maralixibat)
oral solution
LIVMARLI (maralixibat) for eligible patients with ALGS and PFIC.
- Interested physicians in Canada and the US who are interested in the ALGS EAP should contact:
Mirumalgs@clinigengroup.com - Interested physicians in Canada and the US who are interested in the PFIC EAP should contact:
MirumPFIC@clinigengroup.com - Interested physicians outside of Canada and the US who are interested in the PFIC or ALGS EAP should contact:
medicineaccess@clinigengroup.COM - To learn more about Mirum’s open clinical trials, please visit:
WWW.CLINICALTRIALS.GOV
Accessing Mirum Medicines
LIVMARLI (maralixibat)
Mirum Access Plus (MAP) – U.S.
Designed to help patients and families start and stay onLIVMARLI (maralixibat), this program connects patients and
families with MAP experts who can help educate on the
journey, from treatment access to financial support.
Embrace Patient Support Program – Canada
Designed to help patients and families navigate the LIVMARLItreatment journey, the program connects patients and their
families with experts who can help explain the process of
getting medication, work with healthcare teams to determine
insurance coverage and confirm eligibility for financial
support programs.
For more information, call 1-833-505-1242 or email support@mirumembrace.com
Cholbam (cholic acid)
Total Care HUB – U.S.
Total Care HUB will continue to service patients whiletransitioning to Mirum Access Plus (MAP). Total Care
HUB is designed to help patients and families navigate
the treatment journey by providing support in the
following ways:
- Explain the process of getting medication
- Work with dedicated healthcare teams to figure out insurance coverage and eligibility for financial support programs
- Provide education and resources to help patients start and stay on therapy
Chenodal (Chenodiol Tablets) 250 mg
Total Care HUB – U.S.
Total Care HUB will continue to service patients while transitioningto Mirum Access Plus (MAP). Total Care HUB is the exclusive
pharmacy for Chenodal.
For more information, call 844-246-5226
Total Care HUB is a registered
trademark and transitional
service
of Travere Therapeutics, Inc
