RESOURCES

Staying in
the know

We are committed to developing safe and effective therapies to help transform realities for those living with rare liver disease. But that also means helping you stay current and up to date on what is going on today. Learn more about resources that are available to provide support to you and your family.

Access
to genetic
testing

Mirum is working alongside Travere Therapeutics to provide support to
ensure qualified patients have access to the Emory Genetics Lab genetic
cholestasis panel at no charge. This panel may assist in diagnosing a
cholestatic liver disease.

Email Us For More
Information

ALGS Vitamins and Supplements Fund

Patients with Alagille syndrome (ALGS) often experience a reduced flow of bile to the small intestine which can cause problems digesting fats and absorbing fat-soluble vitamins such as vitamins A, D, E, and K. These deficiencies may cause malnutrition and contribute to complications related to growth. As such, vitamins often become an essential component to care for children with ALGS.

The HealthWell Foundation, a US-based organization, has launched a new fund to provide financial assistance to patients living in the U.S. with ALGS. Through the fund, eligible patients within the U.S. and U.S. territories who have annual household incomes up to 500 percent of the federal poverty level can qualify for up to $1,500 in financial assistance to obtain vitamins and supplements for the management of their condition.

LEARN MORE ABOUT THE ALGS VITAMINS AND SUPPLEMENTS FUND

Support for living with a rare disease

Find support for people and families living with rare disease:

Childhood Liver Disease Research Network
EUROPEAN LIVER PATIENTS’ ASSOCIATION
GLOBAL GENES
HETZ LIVER
Information about Alagille syndrome (ALGS)
ALAGILLE SYNDROME ALLIANCE
MEDLINEPLUS
NIH: ALAGILLE SYNDROME
DOWNLOAD
ALGS INFOGRAPHIC
Information about progressive familial
intrahepatic cholestasis (PFIC)
PFIC NETWORK
MEDLINEPLUS
DOWNLOAD
PFIC INFOGRAPHIC
Information about biliary atresia (BA)
BARE, INC.
Information about primary sclerosing cholangitis (PSC)
PSC SUPPORT
PSC PARTNERS
Information about primary biliary
cholangitis (PBC)
PBCERS
PBC FOUNDATION
THE CANADIAN PBC SOCIETY

Expanded
access
for
LIVMARLI® (maralixibat)
oral solution

Mirum’s Expanded Access Program (EAP) offers access to
LIVMARLI (maralixibat) for eligible patients with ALGS and PFIC.
LEARN MORE ABOUT
THE PROGRAM

Mirum Access Plus (MAP)

Designed to help patients and families start and stay on
LIVMARLI (maralixibat), this program connects patients and
families with MAP experts who can help educate on the
journey, from treatment access to financial support.
Mirum Access Plus (MAP)